Autosomal erythropoietic protoporphyria Advocacy Hub | UniteRare

At a Glance

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Regulatory Watchboard

4 events

Jul 2024Entire Papilla Preservation and Conventional Flap Surgery in Treating Intrabony Defects: A 6-Month Clinical Trial

Necmettin Erbakan University

TrialACTIVE NOT RECRUITING

Dec 2023INcreased Sun Exposure Without Pain In Research Participants With EPP or XLP

Tanabe Pharma America, Inc. — PHASE3

TrialACTIVE NOT RECRUITING

Aug 2023HELIOS: Open-Label, Long-Term Extension Study to Investigate the Safety, Tolerability, and Efficacy of DISC-1459 (Bitopertin) in Participants With EPP or XLP

Disc Medicine, Inc — PHASE2, PHASE3

TrialENROLLING BY INVITATION

Aug 2021Extension Study to Evaluate Safety and Tolerability of Oral Dersimelagon (MT-7117) in Subjects With Erythropoietic Protoporphyria (EPP) or X-Linked Protoporphyria (XLP)

Tanabe Pharma America, Inc. — PHASE3

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Autosomal erythropoietic protoporphyria.
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Clinical Trial Landscape

1 active trial

1PHASE2, PHASE3

1Total recruiting

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Recent News & Research

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Specialist Network

Top 6 by expertise

Will Savage, MD PhD

Disc Medicine

Score 44 trials

Karthik Ravi, MD

Mayo Clinic

📍 ROCHESTER, MN

Score 36 trials

Micheline Mary Mathews-Roth

Brigham and Women's Hospital

Score 01 trial

Hans C Wulf

Bispebjerg Hospital

Score 01 trial

Micheline M Mathews-Roth

St. Luke's-Roosevelt Hospital Center

Score 01 trial

Alex Anstey

St Woolos Hospital, Newport

Score 01 trial

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