Ataxia-telangiectasia Advocacy Hub | UniteRare

At a Glance

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Regulatory Watchboard

8 events

Sep 2026Randomized Double-Blind Phase II Trial of Baby Exemestane Versus Baby Tamoxifen in Post-Menopausal Women at High Risk for Breast Cancer

Dana-Farber Cancer Institute — PHASE2

TrialNOT YET RECRUITING

Nov 2025Safety and Efficacy of Mutation-targeted Precision Genetic Therapy for Ataxia-Telangiectasia (A-T)

Timothy Yu — PHASE1, PHASE2

TrialNOT YET RECRUITING

Mar 2025A Pivotal Study of N-Acetyl-L-Leucine on Ataxia-Telangiectasia (A-T)

IntraBio Inc — PHASE3

TrialACTIVE NOT RECRUITING

Oct 2024Tuvusertib Combined With Niraparib or Lartesertib in Participants With Epithelial Ovarian Cancer (DDRiver EOC 302)

EMD Serono Research & Development Institute, Inc. — PHASE2

TrialACTIVE NOT RECRUITING

Mar 2024Tuvusertib (M1774) Human Mass Balance and Absolute Bioavailability Study (DDRIVER Solid Tumors 303)

Merck Healthcare KGaA, Darmstadt, Germany, an affiliate of Merck KGaA, Darmstadt, Germany — PHASE1

TrialACTIVE NOT RECRUITING

Sep 2023Testing the Combination of the Anti-Cancer Drugs Temozolomide and M1774 to Evaluate Their Safety and Effectiveness

National Cancer Institute (NCI) — PHASE1, PHASE2

TrialRECRUITING

Aug 2021A Study of Reduced-dose Radiation in People With Metastatic Tumors With a Genetic Change

Memorial Sloan Kettering Cancer Center — PHASE2

TrialRECRUITING

Jun 2019NAD Supplementation to Prevent Progressive Neurological Disease in Ataxia Telangiectasia

University Hospital, Akershus — PHASE2

TrialACTIVE NOT RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Ataxia-telangiectasia.
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Clinical Trial Landscape

2 active trials

1Phase 3

1Phase 2

2Total recruiting

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Recent News & Research

No recent news articles indexed yet for Ataxia-telangiectasia.
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Specialist Network

Top 6 by expertise

Andreea Nissenkorn, MD

Sheba Medical Center, Pediatric Neurology and National A-T Clinic

Score 201 trial1 pub

Michael Goggins, MD, MB BCh BAO

Johns Hopkins University

📍 PHILADELPHIA, PA

Score 172 trials

Yoshiki Arakawa

Kyoto University Hospital

Score 101 trial16 pubs

Hilde L Nilsen

University Hospital, Akershus

Score 81 trial

Amy Xu, MD, PhD

Memorial Sloan Kettering Cancer Center

Score 81 trial

Luca Benatti, MD

Quince Therapeutics S.p.A.

Score 81 trial1 pub

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