Apert syndrome Advocacy Hub | UniteRare

At a Glance

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Regulatory Watchboard

5 events

Dec 2025A Phase 1b/2 Study of the Safety and Efficacy of the Monoclonal Antibody OM-RCA-01 in Patients With Metastatic Tumors Expressing Fibroblast Growth Factor Receptor 1

Kidney Cancer Research Bureau — PHASE1, PHASE2

TrialRECRUITING

Nov 2023Safety and Anti-Tumor Activity of TYRA-200 in Advanced Cholangiocarcinoma With Activating FGFR2 Gene Alterations

Tyra Biosciences, Inc — PHASE1

TrialRECRUITING

Mar 2023A Study of Erdafitinib Intravesical Delivery System in Japanese Participants With Bladder Cancer

Janssen Pharmaceutical K.K. — PHASE1

TrialACTIVE NOT RECRUITING

Jun 2021NCCH2006/MK010 Trial (FORTUNE Trial)

National Cancer Center, Japan — PHASE2

TrialRECRUITING

Oct 2020A Study of E7090 as Monotherapy and in Combination With Other Anticancer Agents in Participants With Estrogen Receptor Positive (ER+) and Human Epidermal Growth Receptor 2 Negative (HER2-) Recurrent/Metastatic Breast Cancer

Eisai Co., Ltd. — PHASE1

TrialACTIVE NOT RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Apert syndrome.
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Clinical Trial Landscape

No active clinical trials currently recruiting for Apert syndrome.
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Recent News & Research

No recent news articles indexed yet for Apert syndrome.
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Specialist Network

Top 6 by expertise

Manuel Häckl, MD

Basilea Pharmaceutica International Ltd, Allschwil

Score 185 trials

Ekaterine Asatiani, MD

Incyte Corporation

Score 72 trials

Luis Féliz Vinas, MD, MD

Incyte Corporation

📍 WEST PALM BEACH, FL

Score 41 trial

Luisa Veronese, MD

Incyte Corporation

Score 41 trial1 pub

Barbara B Biesecker, CRNP

National Human Genome Research Institute (NHGRI)

📍 CLARKS SUMMIT, PA

Score 316 trials

Meng Wu

Icahn School of Medicine at Mount Sinai

Score 01 pub

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