Andersen-Tawil syndrome Advocacy Hub | UniteRare

At a Glance

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3Specialists

Regulatory Watchboard

2 events

Sep 2025Comparison of the Silverman-Andersen Score and the Downes Score

Muğla Sıtkı Koçman University

TrialNOT YET RECRUITING

Mar 2025N-of-1 in ATS and MEPPC

Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA) — PHASE2

TrialNOT YET RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Andersen-Tawil syndrome.
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Clinical Trial Landscape

No active clinical trials currently recruiting for Andersen-Tawil syndrome.
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Recent News & Research

No recent news articles indexed yet for Andersen-Tawil syndrome.
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Specialist Network

Top 3 by expertise

Robert C. Griggs, MD

University of Rochester

Score 82 trials

Paul Twydell, DO

University of Rochester School of Medicine & Dentistry

📍 GRAND RAPIDS, MI

Score 01 trial

Emma Ciafaloni, MD

University of Rochester

📍 ROCHESTER, NY

Score 01 trial

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