Alexander disease Advocacy Hub | UniteRare

At a Glance

Live from database

🔬

Regulatory Watchboard

3 events

Oct 2024Comparative Effects of Alexander Techniques and Feldenkrais Method in Parkinson's Disease

Riphah International University — NA

TrialENROLLING BY INVITATION

Jun 2021A Study to Evaluate the Safety and Efficacy of Zilganersen (ION373) in Patients With Alexander Disease (AxD)

Ionis Pharmaceuticals, Inc. — PHASE3

TrialACTIVE NOT RECRUITING

Jan 2016Evaluation of Outcome Metrics in Alexander Disease

Children's Hospital of Philadelphia

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

1 program

FINANCIAL LANDSCAPE SUMMARY

Total programs

Open now

Copay cards

Copay Assistance1

MANNITOL

Unknown

OpenContact for detailsApply ↗

View all support programs on disease page →

Clinical Trial Landscape

2 active trials

1Phase 3

1Unknown

2Total recruiting

Search clinical trials for Alexander disease →

Recent News & Research

No recent news articles indexed yet for Alexander disease.
Search PubMed for Alexander disease →

Browse all Alexander disease news →

Specialist Network

Top 6 by expertise

Adeline Vanderver, MD

Children's Hospital of Philadelphia

📍 Los Angeles, California

Score 154 trials1 pub

Amy Waldman, MD

Children's Hospital of Philadelphia

Score 121 trial1 pub

Schuichi Koizumi

Interdisciplinary Graduate School of Medicine

Score 03 pubs

Kozo Saito

Interdisciplinary Graduate School of Medicine

Score 03 pubs

Albee Messing

University of Wisconsin-Madison

Score 05 pubs

María A Pajares

Centro de Investigaciones Biológicas Margarita Salas

Score 02 pubs

View all Alexander disease specialists →

Quick Actions

📄

View Disease Page

Full profile, treatments, community

🔬

Search Clinical Trials

Find recruiting studies now

🩺

Find Specialists

Ranked by expertise & trials

💰

Financial Assistance

Copay cards, PAPs, grants

📰